Muscular Dystrophy Campaign supporters have secured a £1million investment into healthcare services for the 5,000 children and adults living with muscle disease across the South West of England.
This fantastic success is the result of a sustained campaign led by the Muscular Dystrophy Campaign and supported by local families, healthcare professionals and the press over the past year.
The South West campaign started in December 2007 when the Muscular Dystrophy Campaign published a hard hitting report, Building on the Foundations, which uncovered major shortfalls in the provision of specialist care in the South West of England. The report revealed survival for patients with Duchenne muscular dystrophy was an average of 18-years-old in the South West compared with 30 years in the North East of England.
The investment, agreed to by Primary Care Trusts (PCTs) in the South West, comes after proposals by the SW Specialised Commissioning Group for a Managed Clinical Network across the region.
The Managed Clinical Network will be a £1 million investment, divided between all PCTs in the region with the contribution weighted on population. It includes the recruitment of the following posts:
2 full-time adult consultants specialising in muscle disease
1 full-time paediatric consultant specialising in muscle disease
3.5 specialist physiotherapists
3 full-time care advisors (for children and adults)
1 psychologist
respiratory and cardiac support
This fantastic success is the result of a sustained campaign led by the Muscular Dystrophy Campaign and supported by local families, healthcare professionals and the press over the past year.
The South West campaign started in December 2007 when the Muscular Dystrophy Campaign published a hard hitting report, Building on the Foundations, which uncovered major shortfalls in the provision of specialist care in the South West of England. The report revealed survival for patients with Duchenne muscular dystrophy was an average of 18-years-old in the South West compared with 30 years in the North East of England.
The investment, agreed to by Primary Care Trusts (PCTs) in the South West, comes after proposals by the SW Specialised Commissioning Group for a Managed Clinical Network across the region.
The Managed Clinical Network will be a £1 million investment, divided between all PCTs in the region with the contribution weighted on population. It includes the recruitment of the following posts:
2 full-time adult consultants specialising in muscle disease
1 full-time paediatric consultant specialising in muscle disease
3.5 specialist physiotherapists
3 full-time care advisors (for children and adults)
1 psychologist
respiratory and cardiac support
The service will be phased in over a period of two years, beginning in April 2009. The Muscular Dystrophy Campaign, families and health professionals will all be involved in the implementation process. The cost for each PCT to implement the network will amount to less than £9 per person each month.
www.disabledsouthwest.co.uk, 8th April 2009
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